If you are a regular reader, you will know that in August last year my cousin's little boy was diagnosed with an aggressive brain tumour. He was 4. I have mentioned Skye a few times on this blog and as you read this, Sammy and I are on the way to spend a day in Oxford with him and his family, celebrating my cousin's birthday.
They will be allowed home from hospital for just a few precious hours.
This has been the pattern all week, after a 5 week stint in isolation for high dose chemotherapy. Sally and I keep in touch by email, and often around midnight when she finally has a moment of quiet. Caring for Skye is a 24 hour job and how she is coping with just a few hours sleep a night astounds me.
The happy family photo of them lying on a beach was taken almost exactly this time last year when they were lucky enough to enjoy a 3 month period of travelling across the world.
They are a happy family going through horrendous pain. Every moment is precious and tomorrow, Skye will undergo a scan to determine whether the high dose treatment has been successful.
In amongst the severe anxiety, round the clock care and juggling their 2 year old youngest son Jesse, they have focussed on something positive. They have set up Blue Skye Thinking, to raise awareness and funds for research into treatment for childhood brain cancers.
There is so much we take for granted. That our children will start school, get married have babies. Live a happily ever after life we show them in fairytales and Disney films.
Skye has shown and continues to show a fighting spirit and strength of 10 men. There is no doubt in his mind he will get better and this is one of the millions of reasons we all love him so much.